People living with conditions like MS are the experts on what it’s like to live with chronic illness and the impact of treatments on quality of life. Engaging patients and caregivers as true partners in research has the potential to improve research, answering the questions that matter most to people living with health conditions like MS. The end result is better, safer treatments, including non-pharmacological ones, that target what patients really need and want.
- In participant-driven research (PDR), the question to be answered comes from a person affected by the disease of interest (instead of a researcher). The individual then works with the investigator to co-design the study.
- Do you have MS or care for someone with MS? Do you have questions about the disease and its effects? Your questions and insights can help MS researchers focus on topics that matter most to those living with the disease.
- Take part in PDR and help drive the direction of MS research by bringing these questions and priorities to the attention of researchers.
iConquerMS participants can now play a larger role than ever in guiding MS research. If you’re not already a member, please consider joining now!
The Our Questions Have Power program gives network members the opportunity to submit research questions on topics they deem important and would like answered, and also comment and vote on questions submitted by others. Together we can improve MS care and bring us closer to a cure!
Participation is easy!
- Log into iConquer MS
- Click on “Propose a Covid-19 MS Research Question” to submit a question
- Click on “Vote on Covid-19 & MS Research Questions” to review and vote on other questions
- Visit iConquerMS periodically to submit, review and/or vote on new questions
