The Many Faces of MS: Exploring Diversity and Differences
Research shows that the African-American and Hispanic-American populations are more affected by MS than historically thought and may have different disease courses. In this…
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These resources have been compiled by the MS Minority Research Engagement Partnership Network (MS MREPN), a collaborative, multi-stakeholder network supported by Accelerated Cure Project for MS. If you have any questions or comments, or would like to recommend a new resource to be included, please contact us at [email protected].
Racial disparities in hypertension management among multiple sclerosis patients
This study indicates Black patients with MS are more likely to have uncontrolled hypertension and be on anti-hypertensive treatment than White patients with MS. Factors such as…
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Advancing Care and Outcomes for African American Patients with Multiple Sclerosis
This review highlights the nature and magnitude of health disparities experienced by African Americans with MS and underscore the pressing need to increase knowledge about and…
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Society for Equity Neuroscience (SEQUINS)
The Society for Equity Neuroscience (SEQUINS) is the world’s first global science organization with improving health equity via research as its primary mission. SEQUINS is…
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MS Health Equity Alliance
Website that spotlights MS patient advocates working to address health disparities, and the health equity activities and resources offered by MS patient advocacy organizations.…
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Perceptions and Preferences Regarding Multiple Sclerosis Research Among Racial and Ethnic Groups
Members of the MS Minority Research Engagement Partnership Network developed a Web-based survey on research impressions, concerns, and preferences regarding study attributes…
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Enrollment of Non-White Participants and Reporting of Race and Ethnicity in Phase III Trials of Multiple Sclerosis DMTs
This research article evaluates ethnic and racial representation in DMT clinical trials and how it has evolved over time. Non-White PwMS are significantly underreported and…
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Enhancing the Diversity of Clinical Trial Populations – Eligibility Criteria, Enrollment Practices, and Trial Designs Guidance for Industry
Over the past few decades, FDA has promoted enrollment practices that would lead to clinical trials that better reflect the population most likely to use the drug if the drug is…
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Research Inclusion, Diversity and Equity Council (RIDE Council)
A council of people diagnosed with MS of diverse races, ethnicities, and identities who can provide perspectives and guidance to researchers. Click here to access this resource.…
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People of Color with MS in Research
Presentation by Dr. Tirisham Gyang on the barriers that people of color may experience in joining clinical trials, and why it’s important that all people have the ability…
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Voices of MS: Our Experiences as Research Participants
Part of the MS Foundation’s 2023 Black History Month webinar series, Yolanda Hardy moderates a discussion among Veronica Daniels Lewis, Delisa French, and Dimika Cavalier…
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Participating in Clinical Trials: Your Opportunity to Make a Difference
Inaugurating our “Living with MS as a Black Person” series, this digital educational program offers insights into clinical trials and their participation…
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